Tuesday, April 1, 2025

Update on my parents

Thank you, my dear readers, for all your kind prayers concerning the situation with my parents. I apologize for the silence of the last few days. Here's an update.

I'm here in Southern California with my dad (who will be 90 in July). My mother (who is 93) is currently in a nearby rehabilitation center after being hospitalized a couple weeks ago. She had a severe stroke a couple years ago which took out her dominant (right) side, but despite that she wasn't doing too badly. My father was still able to care for her at home with the help of mobility aids, a wonderful in-home care assistant who came in twice a week to bathe her, etc.

Since I only see my parents about once a year, it was clear to me that my mom was gradually declining, but my father (perhaps stubbornly) was seeing incremental steps and still insisted he could keep her at home and care for her himself.

Last October, God knows how, both my parents got COVID. Dad recuperated at home, but Mom was hospitalized. Both recovered, but we think it was this bout of COVID that precipitated an extremely rapid decline in my mother's health.

My three brothers, one of whom lives an hour away and the other two of whom live in the Bay Area, have been wonderful over the past couple of months, tag-teaming to stay with my parents and assist with my mother's care. Then my dad took a fall (tripped in the middle of the night on the way to the bathroom) and received some muscle damage in his arm as well as other bumps and bruises, and it became crystal-clear that my mother could no longer be cared for at home, no matter how much my dad wanted it.

Mom was transferred to a rehab facility which is, thankfully, only a couple of miles away from my parents' house. She is unable to speak coherently, unable to walk, sit up without assistance, etc. Her decline (both mental and physical) is so abrupt that everyone is baffled. Possibly it's due to rapid-onset Alzheimer's resulting from COVID; we don't know.

While originally I thought I would be here to assist with my mother's physical care, the urgency of that reason disappeared when she was transferred to the rehab facility. My job then became convincing my dad that Mom cannot come home, for her own safety.

My dad is a former engineer; he's a logical thinker; but this was his blind spot. My parents have been married 66 years, and he couldn't accept that she had to stay under expert care. My brothers were gently trying to convince him, but he wouldn't agree.

The trouble is, Mom is not responding to any of the therapies offered in the rehab center (speech/physical/occupational), and the staff is recommending she be transferred to the other side of the building, to the long-term care facility. Dad didn't want this; he wanted her home.

Then, on my second evening here, we went to see my mom and feed her dinner (Dad is there twice a day, feeding her both lunch and dinner), and she was so out of it that it became clear even to my dad that she couldn't come home. He had a rough night and a rough follow-up morning as he came to grips with this reality. It was for this reason, if no other, that I'm glad to be here to support him.

Part of the urgency to have my dad accept this is because as long as my mom is a patient at the rehab facility, then she has a smooth and automatic transfer to the long-term care facility. But if she's removed from the rehab center (to come home), then she loses that status and will be placed on a waiting list. And ... she can't wait. For her physical safety, she needs skilled care.

Anyway, that's the status at the moment. Dad and I go to the rehab center twice a day to feed her. I do most of the feeding; as I told Dad, "You'll have a longer chance to feed her. I won't" (since my visit here is fairly short).

My youngest brother, who has been incredible, warned me well about my mother's decline, so her condition wasn't a shock. It's just sad to see her regressing almost to an infantile state. But my dad hasn't wavered in his care for her, even though she's no longer at home. That, dear readers, is marriage.

I don't know how much longer I'll be here, but I'm guessing another 10 days or so. Dad and I have a meeting with my mother's caseworker this week to discuss the financial aspects (all the medi-whatevers: MediCal, MediCaid, MediCare, etc.). They'll transfer my mother to the long-term care side of the facility in the next couple of days.

Then, to make things worse, today we had to get a form notarized. My dad's sister (my aunt) isn't expected to live long. She never married or had children, so my dad is her closest living relative. He had to sign a consent form (and get it notarized) to have her buried in the family plot near my grandparents and great-grandparents. So yeah, it's been a tough month for my dad.

I deeply appreciate everyone's thoughts and prayers.

23 comments:

  1. You are very blessed to have the family that you do

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  2. Continued prayers and blessing for all of you. Fern

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  3. Your parents sound like they have had a wonderful life with a lot of love. I remember you writing some about your mother's early life and how well she overcame that early beginning. I remember my seeing my mother declining in her later years and I am now in my own declining years. Help your father come to grips with the love of his life slipping away. Your whole family sounds like your parents did their job well.

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  4. Prayers sent Patrice. Pat

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  5. Dear Patrice, I am so very sorry for you, your Dad and the family. Heartfelt prayers for you and your Dad will be sent to our Lord Jesus. It will be hard for all of you and particularly your Dad to lose his partner of so many years. It's good that you can be there for however long you are able. Blessings to all. Ramona from NC

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  6. Thinking of you all. That rapid decline in very elderly patients can be so shocking.

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  7. A note on your mother's dementia - it could be rapid onset. But also in her home she had muscle memory. She didn't have to think about routines. She could do them or be prompted through them. Now in a new environment she no longer has that. So she had to think about where things were and what to do. If the dementia had been present before, and then combined with being sick and going to a new environment, her inabilities could have become more obvious. It is a blessing she has a family and husband who love her and have wanted to care for her. May God be with you all in these days.

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  8. When these things come together, health crisis, relocation, and probably another relocation, it takes a toll. People able to stay in one place can often stay better oriented. Not talking about your mom. Her move is clearly essential.

    My grandmother was in a LTC facility that suddenly closed for some reason.
    She had to be moved immediately as did all of them. It was an hour and a half from me and I was working long hours, but did manage to go with her during the transfer and go several times during the 3 weeks it took to get her facility reopened. She was transferred back to her same room, same bed, same staff, but the shock of that move messed up her cognitive functions and ability to communicate well any more. She lived another couple years, but never really came back. Orientation when we get old is much more fragile. If she goes to LTC go ahead and start trying to figure out how you can make the place more familiar to her. Even something as ordinary, if possible, as the same TV programs on if she watches TV. I'm convinced hearing even the familiar voices of say, Pat Sayjack and Vanna White, is helpful and comforting. There's a reason "Wheel of Fortune" is a scheduled activity in many nursing homes.
    Good luck. Prayers continue.

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  9. Please have your Mom checked for a UTI. In the elderly a UTI can be painless and cause Dementia-like symptoms. Prayers for your family.

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    1. Believe it or not, we already did. It was negative.

      - Patrice

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    2. Is it possible for your Dad to move in with your Mom? I cared for couples years ago in shared rooms. Later they were split up if Memory Care was needed, but at least they were in the same building.

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    3. Yes. My father called me one evening and said he was hallucinating--that the house was ringed with children. I picked him up to go to the ER and he said, "You really can't see the children?" Nope. UTI. Just as an aside the ER doctor and the medical student shadowing him treated him disrespectfully. I pulled them aside and said, "My father helped save President Nixon's life as a Marine. Then he was a highly decorated member of the NYPD. Please treat him with respect."

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  10. Patrice, I will continue to pray. You have nothing but my empathy. We had a very similar set of events from 2020-2024 with my parents, after a decline in my mother's cognitive abilities due to Alzheimers. Having to have the conversation with my parents that it was time to make a change was literally the hardest thing I have ever had to speak with them about.

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  11. Thank you for sharing this so I can pray specifically for you and your parents as you go thru this transition time.

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  12. I have been praying for you and your parents Patrice and am sorry for the heartache of all involved. I'm glad that your Dad is at least now able to see that your Mum cannot go back home. Blessings to you all as you finalise everything. Jenny

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  13. Prayers for you and your family during this most difficult time. Family support is everything.

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  14. My thoughts and prayers are with you! It was the hardest thing I have ever done, having Dad go into an end of life facility. He passed 6m later. That was 16 years ago.

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  15. Good wishes from Long Island. Caring for my parents after my mother's stroke was horrific. There are no good answers. I believe my father's caring for my mother killed him, and then add in my mom's suicide attempt....yeah. So awful.

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  16. I'm so sorry for your situation. My parents went through the same issues and it is heartbreaking. I just hope the orange haired man doesn't destroy medicade/medicare before you need it. This scares me. our thoughts are with you.

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  17. Handling my parents was the worst thing I have had to do so far in life, I fully understand and offer my empathy for all your going thru. I hope for your sake it will be over soon and you can start to get over it all, and they can go to a better life.

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  18. Your whole family are in my thoughts and prayers. Hugs to you all.

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  19. I'm so sorry to hear about your family's issues. When things go wrong, they often go wrong fast and in multiple different ways. I know you must be glad you are there to help and I'm glad your dad made the riht decision. I would suggest adding transport options (so that your dad can visit your mom safely) to your list, if you haven't already. It could give your brother some relief if he is the one handling that.

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  20. When my husband was at his father's house to help take care of him he called to tell me about his dad's condition. I immediately said please take a photo asap. He passed less than a week later and it was the last photo of him and his dad. Maybe you can get your brothers together along with your dad and mom and take that photo, you will cherish it. Prayers for full recovery for both your parents, God can do it.

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